PD Active Website Terms of Use and Privacy Notice (updated February 25, 2021)

We may use cookies to ensure that we give you the best experience on our website. By continuing to use this site, you agree to our use of cookies. 

PD Active takes your privacy seriously, and we are committed to safeguarding, preserving and respecting the privacy rights of our visitors and supporters. This Privacy Notice (the “Notice”) explains how we collect personal information about you when you visit our website, https://www.pdactive.org/ (the “Website”), how we use and share that information and the rights you have to control our use and sharing of it.

You should read this Notice carefully. We recommend printing and retaining a copy for your future reference. By accessing, browsing, or otherwise using the Website, you confirm that you have read, understood and agreed with this Notice.

This Notice applies regardless of how the Website is accessed and will cover any technologies or devices by which PD Active makes the Website available to you.

If you have any questions or concerns about PD Active’s personal information policies or practices, you can contact us in the methods described in the “How to Contact Us” section below.

WHAT IS PD Active?

PD Active provides essential information, practical tools, and inspiration to people living with Parkinson’s. It offers exercise classes, speech classes, educational forums and support groups. 


PD Active collects personal information to provide services, to create content, and to fulfill legal obligations. You voluntarily provide personal information directly to us, such as when you complete a form or submit a donation. We also collect personal information when you interact with the Website, for example, through our use of Cookies. We also may collect personal information from third parties.

Information You Provide

We collect the following information that you voluntarily provide to us:

  • Filling in Forms on our Website. If you request to receive resources, subscribe to our mailing list or register for an event, we will ask you to provide information such as your name, email address, and/or mailing address. 
  • If you make a donation to PD Active, we will require you to provide your name, billing address, email address, and financial transaction information. You may also provide your phone number, company name, and other information regarding your donation. Donations to PD Active are processed by third-party payment processors, including PayPal. Please refer to the third parties’ privacy policies for more information about how they process and store payment information.
  • If you send us email, we will collect your email address and any information that you provide in the email.
  • Social Media. If you interact with our Website by sharing on a social media platform, we may collect the information that you post. Please note that your comments will be visible to the public, so you should never share personal information that you would like to keep private.
  • If you attend an event, class, webinar or other online activity, the information that you post, such as your name or relationship with Parkinson’s disease, or photos or videos of your attendance may be visible to the public, so you should never share personal information (including on-screen video) that you would like to keep private.

Information Provided by Third Parties

We may receive certain personal information about you from third parties. For example, a third party may register you for an event or sign you up to receive our mailings. If you submit any personal information about another individual to us, you are responsible for making sure that you have the authority to do so and allow us to use their personal information in accordance with this Notice.

Information as You Navigate Our Website

We automatically collect certain personal information through your use of the Website, such as the following:

  • Usage Information. We collect information automatically through your use of the Website, such as which of the pages on the Website you access, the frequency of access, and what you click on while on our Website.
  • Device Information. We collect information about the device you are using, such as hardware model, operating system, application version number, and browser.
  • Mobile Device Information. In addition to the Device Information listed above, when you access our Website via a browser on your mobile device, we collect aggregated information about whether you are accessing the Website via a mobile device or tablet, device type, and carrier.
  • Location Information. We may collect location information from Website visitors on a city-regional basis.


What are Cookies?

Cookies are small files created by websites, including our Website, that reside on your computer’s hard drive and that store information about your use of a particular website. When you access our Website, we use Cookies and other tracking technology (such as web beacons and pixel tags) to:

  • Estimate our audience size and usage patterns;
  • Store information about your preferences, allowing us to customize our Website according to your individual needs;
  • Contact you to provide you with information or services that you request from us;
  • Advertise new content, events, and services that relate to your interests;
  • Provide you with more personalized content that is most relevant to your interest areas; and
  • Recognize when you return to our Website

We set some Cookies ourselves and others are set by third parties. You can manage your Cookies preference as described in the “Managing Your Cookies” section below.

What Types of Cookies Do We Use and Why?

These are the different types of Cookies that we and our service providers use on the Website:

  • Essential Cookies. These Cookies are required for the operation of the Website and enable you to move around the Website and use its features. Disabling these Cookies can negatively impact the Website’s performance.
  • Analytics, Performance and Research Cookies. These Cookies allow us to analyze activities on the Website. They can be used to improve the functioning of the Website. For example, these Cookies recognize and count the number of visitors and see how they move around the Website. Analytics Cookies also help us measure the performance of our advertising campaigns to help us improve them and to optimize the Website’s content for those who engage with our advertising.
  • Functionality Cookies. These Cookies are used to recognize you when you return to the Website. This enables us to personalize content for you and remember your preferences.
  • Social networking cookies. These Cookies are used to enable you to share pages and content that you find interesting on our Website through third-party social networking and other websites. These Cookies may also be used for advertising purposes.

How Long Do Cookies Stay on My Device?

Some Cookies operate from the time you visit the Website until the end of that particular browsing session. These Cookies, which are called “session cookies,” expire and are automatically deleted when you close your Internet browser.

Some Cookies will stay on your device between browsing sessions and will not expire or automatically delete when you close your Internet browser. These Cookies are called “persistent cookies” and the length of time they will remain on your device will vary from Cookie to Cookie. Persistent Cookies are used for a number of purposes, such as storing your preferences so that they are available for your next visit and to keep a more accurate account of how often you visit the Website, how your use of the Website may change over time, and the effectiveness of advertising efforts.

Managing Your Cookies

Cookies can be blocked by changing your Internet browser settings to refuse all or some Cookies. If you choose to block all Cookies (including essential Cookies) you may not be able to access all or parts of the Website.

You can understand which third parties have currently enabled Cookies for your browser or mobile device and how to opt-out of some of those Cookies by accessing the Network Advertising Initiative’s website or the Digital Advertising Alliance’s website or, if you are located in the European Union, at the Your Online Choices website. For more information on mobile specific opt-out choices, visit the Network Advertising Initiative’s Mobile Choices website.


We use Google Analytics, a web analytics service provided by Google, Inc. Google Analytics uses Cookies or other tracking technologies to help us analyze how users interact with the Website, compile reports on the Website’s activity, and provide other services related to Website activity and usage. The technologies used by Google may collect information such as time of visit, whether you are a returning visitor, and any referring website. The technologies used by Google Analytics do not gather information that personally identifies you. The information generated by Google Analytics will be transmitted to and stored by Google and will be subject to Google’s privacy policies. To learn more about Google’s partner services and to learn how to opt-out of tracking of analytics by Google, click here.

We also use Google Remarketing features to collect data about visitors to our Website to, among other things, deliver advertising content on sites across the Internet in a manner that is specifically directed toward the interests expressed by the visitors while on our Website. Google uses Cookies to serve ads based on someone’s past visits to the Website. You can opt-out of Google’s use of Cookies to serve ads based on your past visits to the Website via the following link: Google Ad Settings.


Our Website does not respond differently based on a user’s Do Not Track signal.


We use personal information we collect about you or that you provide to us in the following ways:

  • To present our Website and its contents in a suitable and effective manner for you and your device;
  • To contact you to provide you with information or services that you request from us;
  • To advertise services that we think may be of interest to you;
  • To invite you to attend our events;
  • To provide support, troubleshoot issues, manage accounts, and respond to requests, questions, or comments;
  • To carry out our obligations and enforce our rights arising from any contracts entered into between you and us; and
  • To notify you about any additions, upgrades, or changes in our services


If you are in a country in the European Union, you are entitled to an explanation of the legal bases we rely on to process your personal information. The legal basis for collecting and using the personal information described above will depend on the personal information concerned and the specific context in which we collect it, which is discussed below.


We may process your personal information based on your consent such as when you make a donation or ask us to send you certain kinds of marketing communications. You have the right to withdraw your consent at any time without affecting the lawfulness of the processing based on consent before its withdrawal.

Our Legitimate Interests

We may process your personal information if doing so is necessary for our legitimate interests and your rights as an individual do not override those legitimate interests. For example, when we process your personal information to carry out fraud prevention activities and activities to increase network and information security, identify usage trends, determine the effectiveness of promotional campaigns, expand our business activities and improve our services and the content and functionality of our Website.

To Perform a Contract

We may process your personal information to administer and fulfill contractual obligations to you.

To Enable Us to Comply With a Legal Obligation

We may process your personal information to comply with legal obligations to which we are subject. This may include any requirement to produce audited accounts, any legal obligation to share information with law enforcement agencies, public or governmental authorities, and to comply with legal process.

Necessary for the Exercise or Defense of Legal Claims

If you bring a claim against us or we bring a claim against you, we may process your personal information in relation to that claim.

PD Active is the Data Controller of all personal information collected from residents of the European Union. If you have any questions about or need further information concerning the legal basis on which we collect and use your personal information for any specific processing activity, please contact us using the “How to Contact Us” section below.


PD Active may share your personal information:

  • With third parties who perform data services on our behalf (e.g., hosting, maintenance, backup, analysis, video conferencing, teleconferencing, electronic communications, print and electronic mail services, etc.). Any such third parties will be under an obligation to us to maintain the confidentiality of your personal information;
  • To third-party service providers to prepare, deploy and analyze advertising content;
  • To third-party service providers who provide services (such as support groups or movement programs) to us, our members, or you;
  • To the extent that we are required to do so by law;
  • In connection with any legal proceedings or prospective legal proceedings;
  • To establish, exercise, or defend our legal rights, including providing information to others for the purposes of fraud prevention;
  • To any person who we reasonably believe may apply to a court or other competent authority for disclosure of that personal information where, in our reasonable opinion, such court or authority would be reasonably likely to order disclosure of that personal information;
  • To any third parties as part of any business or asset sale; and
  • To any other person or entity where you consent to the disclosure

We do not sell or rent personal information obtained through our Website to any non-affiliated companies for their direct marketing purposes.


PD Active respects your rights in how your personal information is used and shared. You may request to review and make changes to your personal information and make choices about the kinds of marketing materials you receive (or choose not to receive marketing materials from PD Active at all) by contacting us as described in the “How to Contact Us” section below.


If you are an individual in a country in the European Union, you have the right to make requests to:

  • Access the personal information we keep about you;
  • Rectify inaccurate personal information;
  • Place restrictions on our use of your personal information;
  • Object to our use of your personal information;
  • Ask us to delete the personal information about you we hold;
  • Have your personal information transferred to you or another party of your choosing; and
  • Make a complaint to the relevant supervising authority

Asking us to access your personal information

You have the right to obtain from us confirmation as to whether or not we are processing personal information about you and, if so, the right to be provided with the information contained in this Notice. You also have the right to receive a copy of the personal information undergoing processing.

Asking us to rectify your personal information

You have the right to ask us to rectify any inaccurate personal information about you and to have incomplete personal data completed.

Asking us to restrict our use of your personal information

You have the right to ask us to place a restriction on our use of your personal information if one of the following applies to you:

  • You contest the accuracy of the information that we hold about you, while we verify its accuracy;
  • We have used your information unlawfully, but you request us to restrict its use instead of erasing it;
  • We no longer need the information for the purpose for which we collected it, but you need it to deal with a legal claim; or
  • You have objected to us using your information, while we check whether our legitimate grounds override your right to object.

Objecting to our use of your personal information

You have the right to object to our use of your personal information where our reason for using it is based on our legitimate interests or your consent (rather than when the reason for using it is to perform an obligation due to you under a contract with us).

Asking us to delete your personal information

You can ask us to delete your personal information if:

  • We no longer need it for the purposes for which we collected it;
  • We have been using it with no valid legal basis;
  • We are obligated to erase it to comply with a legal obligation to which we are subject;
  • We need your consent to use the information and you withdraw consent;
  • You object to us processing your personal information where our legal basis for doing so is our legitimate interests and there are no overriding legitimate grounds for the processing.

However, this right is not absolute. Even if you make a request for deletion, we may need to retain certain information for legal or administrative purposes, such as record keeping, maintenance of opt-out requirements, defending or making legal claims, or detecting fraudulent activities. We will retain information in accordance with the “How Long Is Your Personal Information Kept” section below.

If you do exercise a valid right to have your personal information deleted, please keep in mind that deletion by third parties to whom the information has been provided might not be immediate and that the deleted information may persist in backup copies for a reasonable period (but will not be available to others).

The right to transfer your personal information to another service provider

You may request that we transfer some of the personal information you have provided to you or another service provider in electronic copy. This applies to personal information we are processing to service a contract with you and to personal information we are processing based on your consent.

Making a complaint

If you have any concerns or complaints regarding our processing of your personal information, please contact us as described in the “How to Contact Us” section below and we will do our best to answer any question and resolve any complaint to your satisfaction.

If, for whatever reason, you feel we do not meet the standards you expect of us, you are also entitled to make a complaint to your local supervisory authority.


Depending on your location (and reflecting applicable law), you may have been asked to indicate your preferences, provide us with your consent regarding the receipt of such information from us, and indicate how you would like to receive it.

Wherever you are located, we will send you marketing communications based on any preferences you may have expressed.

We only want to send you information in which you are interested. If you do not want to receive these communications or would like to understand more about other unsubscribe options, please contact us as set out in the “How to Contact Us” section below.

For email communications, you can opt-out and/or manage your preferences by clicking on the unsubscribe link provided at the bottom of any email you receive from us. If we call you with information you do not want to receive, you can advise us of this during the telephone call.


We will retain your personal information for as long as necessary to fulfill the purposes for which we collect it and as set out here and for the purpose of satisfying any legal, accounting, or reporting requirements that apply to us.


The Website contains links to third-party websites. When PD Active provides links, it does so only as a convenience and does not endorse any products or services and is not responsible for any content of any third-party website or any links contained within. It is important to note that this Notice only applies to https://www.pdactive.org/. We are not responsible and assume no responsibility for any personal information collected, stored, or used by any third party as a result of you visiting their website. We also advise that you read the privacy notice of any third-party websites you choose to visit carefully.


The security of your personal information is important to us. We take various reasonable organizational and technical measures to protect your personal information from unauthorized access, disclosure, alteration, or destruction. If required by law to do so, we will notify you and/or the relevant supervisory authority in the event of a data breach.

However, we cannot and do not guarantee complete security, as it does not exist on the Internet.


The Website is not intended for children under 13 years of age, and we do not knowingly collect personal information from children under 13. In the event that we learn that we have collected personal information from a child under age 13 without verification or parental consent, we will immediately delete that information. If you believe that we might have any information from or about a child under 13, please contact us using the information provided in the “How to Contact Us” section below.


We may add to, delete, or change the terms of this Notice from time to time by posting a notice of the change or an amended Notice on the Website. Your continued use of this Website is deemed to be acceptance of such changes. This Website is an educational and informational service provided by us with the express condition that users agree to be bound by the terms and conditions set forth in this document, as they may be modified from time to time. Your consultation and use of this Website constitute your acknowledgment and acceptance of all of the following terms and conditions


You acknowledge that the information on this Website is provided “as is” for general information only. This website does not offer medical advice or recommendations, and individuals should not rely on the information posted on this Website as a substitute for consultations with qualified health care professionals who are familiar with individual medical conditions and needs. PD Active strongly recommends that care and treatment decisions related to Parkinson’s disease and any other medical condition be made in consultation with a person’s physician or other qualified health care professionals who are familiar with the individual’s specific health situation.

Whether through this or any other PD Active website, videoconferencing applications, or websites hosted by third parties, you are solely responsible for your own activities, actions, and treatments. If you participate in any classes, pre-recorded videos, or third party websites be aware of your limitations and capabilities. PD Active, its board, staff, members and any instructors are not providing health care or treatment recommendations. Information shared or included through this Website or other media is for informational purposes only. 

Information provided on this Website is intended to allow PD Active’s users and the public with timely access to information. While attempts are made to provide accurate, current, and reliable information, we recognize the possibility of human and/or mechanical error. PD Active makes no representations with respect to the information, services, products, or message on this Website and specifically disclaims any other warranties, including but not limited to implied or express warranties of merchantability or fitness for any particular usage, application, or purpose. PD Active makes no warranties of any kind regarding the operation of this Website, including but not limited to any warranty of accuracy, completeness, currency, reliability, merchantability, or fitness for a particular purpose, or any warranty that these pages, or the server that makes them available, are free of viruses, worms, Trojan horses, other harmful elements, or other code that manifest contaminating or destructive properties, and such warranties are expressly disclaimed.


PD Active makes no representation, warranty, or endorsement, express or implied, as to any of the information, services, products, or messages on any other websites which may be accessed through a hyperlink on this Website. In particular, these links are provided for convenience of reference only and are not intended as an endorsement by PD Active of the organization or individual operating the website or a warranty or endorsement of any type regarding the website or the information, services, products, or messages posted on or available from such website.


PD Active may grant the owner of a website permission to use a hyperlink to this Website from its website, provided: (a) any such link must clearly be marked “PD Active;” (b) the appearance, position, and other aspects of either the link or the host website may not be such as to damage or dilute the goodwill associated with PD Active’s name and trademarks; (c) the appearance, position, and other aspects of either the link or the host website may not create the false appearance that any other entity is associated with or sponsored by PD Active; and (d) the link, when activated by a user, must display this Website full-screen and not with a “frame” on the linked website. The owner of any website with a hyperlink to this Website agrees to the foregoing terms and agrees to delete any such link upon notice from PD Active that such permission has been revoked, which notice may be given at any time and for any reason.

PD Active is not responsible for the information or materials contained on websites linking to this Website. Links to this Website are provided for convenience of reference only and are not intended as an endorsement by PD Active of the organization or individual operating the host website or a warranty of any type regarding the host website or the information on the host website.


Unless otherwise indicated, all information contained on this Website, such as text, graphics, logos, button icons, images, audio, and video clips, is copyrighted by and proprietary to PD Active. The content displayed on any page of this Website may be used for personal and noncommercial uses which do not harm the reputation of PD Active, provided that the user does not remove any trademarks, copyright, and any other notice contained in such content.

The name and mark, PD Active and its attendant logos and taglines are trademarks of PD Active and may not be used or reproduced without its prior written consent.


You agree that you will hold harmless PD Active and its officers, directors, agents, employees, and volunteers from all claims arising out of or related to your access or use of, or your inability to access or use, this Website or the information, services, products, or messages contained in this Website or other websites to which it is linked, including but not limited to claims that you have found something you have heard, viewed, or downloaded from this Website or another website to which it is linked to be obscene, offensive, defamatory, or infringing upon your intellectual property rights. In no event will PD Active or the contributors of information to this Website be liable to you or anyone else for any decision made or action taken by you in reliance on such information or for any consequential, special, or similar damages, even if advised of the possibility of such damages. You hereby release and forever waive any and all claims you may have against PD Active, its officers, directors, agents, employees, and volunteers for losses or damages you sustain in connection with your use of this Website.


This website (excluding linked sites) is controlled by PD Active, which is headquartered in the State of California, United States of America. The PD Active website can be accessed from all 50 states, as well as from other countries around the world. As each of these places has laws that may differ from those of California, by accessing this Website both you and PD Active agree with the statutes and laws of the State of California, without regard to conflicts of laws principles thereof, will apply to all matters arising from or relating to the use of this Website. You and PD Active also agree and hereby submit to the exclusive personal jurisdiction and venue of Alameda County, California and the United States District Court for the Northern District of California orado with respect to such matters. PD Active makes no representation that materials on the website are appropriate or available for use in other locations and accessing them from territories where their contents are illegal is prohibited. Those who choose to access this Website from other locations do so on their own initiative and are responsible for compliance with local laws.


PD Active’s digital community channels provide a place where ideas and content can be shared, and conversation can flow freely and respectfully. Below are our guidelines for communicating on these channels.

  • Be respectful when interacting with our community.
  • PD Active does not tolerate abusive language or content, including material that is defamatory, obscene, violent, threatening, harassing, discriminatory, aggressive, argumentative, or that can be construed as bullying or is otherwise deemed inappropriate.
  • PD Active reserves the right to remove content from our social media channels if we feel it fails to adhere to any of these guidelines.
  • PD Active reserves the right to block/ban users from our social media channels if they exhibit inappropriate behavior.
  • User posts, comments, and references are not recommended or endorsed by PD Active. Each individual is responsible for the statements, opinions, and information they express on our social media channels.


PD Active’s address is PO Box 9246, Berkeley, CA 94709. You can contact PD Active with any questions or concerns by emailing us at info@pdactive.org or calling 510-479-6119.