Video recordings of some of PD Active’s events are available on PD Active’s YouTube channel.
PD Active depends on donations to bring programs like these to our members free of charge. We remain grateful for your contributions. DONATE.
The Environment
- Parkinson’s Disease & the Environment: Causes & Prevention with Dr. Sam Goldman
- Environmental and Occupational Toxins with Dr. Beate Ritz
- The Parkinson’s Plan with Dr. Ray Dorsey
Physical Health
- Brain Function, Movement and Cognition: Implications for Parkinson’s Disease
- Dying with Dignity
- Exercise Is Medicine with Dr. Nijee Luthra
- Exercise Smarter, Not Harder – Physical Therapy and Evidence-Based Exercise
- Finding Your Voice with PD
- Gut Microbiome and PD
- Hope and reality on the path to curing Parkinson’s disease with Matt Jacobson
- Integrative Care in Parkinson’s Disease: Advancing Treatments Through Science and Lifestyle with Dr. Kian Adabi
- The Human Motor Control and Neuromodulation Lab
- An Introduction to Parkinson’s Disease for Spanish Speakers- Introducción a la Enfermedad de Parkinson para Hispanohablantes
- Lifestyle as a Disease Modification Strategy with Dr. Laurie Mischley
- Movement Problems with Dr. Salima Brillman
- Occupational & Physical Therapy with Dr. Katrina Long and Dr. Anuja Chandrana
- Palliative Care with Dr. Maya Katz
- Speech and Swallowing with Lyssa Rome and Julie Hicks
- Staying Safe in the Hospital for People with Parkinson’s
- Tips for Living Well with PD with Dr. Soania Mathur
- Women and Parkinson’s Disease: Addressing Differences and Unmet Needs
- PPMI, PD Progression Markers, Precision Medicine & Prevention with Dr. Carlie Tanner
Mental Health
- Avoiding Depression and Apathy
- Hallucinations and Dementia with Dr. Angelika Zarkali and Dr. Suzanne Reeves
- Sleep Disorders with Dr. Liza Ashbrook
- How ‘Magic Mushrooms’ Could Help Parkinson’s Disease Patients with Dr. Ellen Bradley
Medications (Natural and Pharmaceutical)
- Cannabis and PD with Dr. David E. Presti
- Holistic Treatments for PD
- Medications with Dr. Diviya Kaul
- Nutrition and the Neuroscience of PD
Care Partners
PD Active
- Annual Member Survey Results 2022
- Annual Member Survey Results 2023
- Keeping Fit and Engaged: Virtual Round Tables with PD Active Instructors
DBS and Gene Therapy
- DBS: What to Expect and How to Live With It
- Gene Therapies for Parkinson’s Disease
- Surgical Options for PD: DBS and Beyond- A Look at Pain and Pain Management with Dr. Jaimie Henderson
- Wearables and DBS
Legal Issues
- Is it Time to Park the Car?
- Legal and Insurance Issues with Parkinson’s
- Long Term Disability, Estate Planning & Trusts
National and International Issues
PPMI, PD Progression Markers, Precision Medicine & Prevention with Dr. Carlie Tanner
(Saturday April 25, 2026)
Dr. Carlie Tanner, Professor of Parkinson’s Disease and Vice Chair for Clinical Research in Neurology at UCSF, spoke about the latest updates from the Parkinson’s Progression Marker Initiative (PPMI), a global study advancing diagnosis, treatment and research in Parkinson’s disease. During the forum, Dr. Tanner shared insights on early detection, prevention, the economic impact of Parkinson’s and current clinical trials. She highlighted how research is working to identify people at risk earlier and create new opportunities to slow or prevent disease progression. Watch the recording on PD Active’s Youtube Channel and view the slides here.
How ‘Magic Mushrooms’ Could Help Parkinson’s Disease Patients with Dr. Ellen Bradley
(Saturday February 14, 2026)
Dr. Ellen Bradley, Assistant Professor in the Department of Psychiatry and Behavioral Sciences at UCSF, spoke about the growing body of research on psilocybin, a compound found in “magic mushrooms.” Early studies suggest it may help treat depression and anxiety and could also improve mood, cognition and motor symptoms in people with PD. During the presentation, Dr. Bradley highlighted important findings from her work and described her continued efforts to explore how psychedelic therapies may support the Parkinson’s community. Learn more about the ongoing study here. Watch the recording on PD Active’s YouTube Channel and view the slides here.
The Parkinson’s Plan with Dr. Ray Dorsey
(Thursday January 29, 2026)
Ray Dorsey, MD, MBA, is a neurologist, researcher, and public health advocate working to end Parkinson’s disease by addressing its root causes: toxic environmental exposures. He is the co-author of Ending Parkinson’s Disease (2020) and the New York Times bestseller, The Parkinson’s Plan: A New Path to Prevention and Treatment (2025). This presentation examined how environmental toxins may contribute to the development of Parkinson’s disease, as well as strategies for prevention and treatment. See the recording on PD Active’s YouTube Channel and the slides here.
Parkinson’s Disease and the Environment: Causes & Prevention with Dr. Sam Goldman
(Saturday August 9, 2025)
Sam Goldman, MD, MPH, physician researcher at UCSF discusses the association between various industrial chemicals and pesticides and Parkinson’s, with a focus on the industrial solvent trichloroethylene (TCE). TCE is used in common household products, such as cleaning wipes and paint removers, and commercial dry cleaners. Dr. Goldman will highlight the recently published results of the Camp Lejeune study which showed that Camp Lejeune veterans who were exposed to drinking water contaminated with TCE and other chemicals had a 70% higher risk of developing Parkinson’s disease than Camp Pendleton veterans who were not exposed to contaminated water. Watch the recording on PD Active’s YouTube Channel and see the slides here.
Keeping Fit and Engaged: Virtual Round Tables with PD Active Instructors on April 24 & 29, 2025
(Thursday, April 24, 2025 & Tuesday, April 29, 2025)
Join PD Active instructors and members in these interactive webinars. Learn about the classes offered and try them out from the comfort of your home. The instructors talked about their teaching approach, the value of the different types of movement and singing they offer as well as a preview of the classes they teach. Read PD Active Instructor Bios.
Movement and Voice Strategies for Wellness: Thursday April 24th with Vickie Russell-Bell (Yoga), Otto Dittmer (Tai Chi), and Lauren Carley (Tremolos Choir)
Learn about the benefits of Yoga, Tai Chi and Singing for Parkinson’s. The recording is on PD Active’s YouTube channel.
Dance and Movement for Connection and Joy: Tuesday April 29th with Andreina Febres (Zumba) and Petra Fibrichova (PD Fit Club and Chair Yoga)
Curious about Zumba, PD Fit Club and Chair Yoga? Find out more in this supportive demonstration. The recording is on PD Active’s YouTube channel.
March Speaker Forum: Integrative Care in Parkinson’s Disease: Advancing Treatments Through Science and Lifestyle
(Saturday, March 8, 2025)
This presentation explored how advancements in Parkinson’s research and treatment can be effectively paired with evidence-based lifestyle interventions to improve patient outcomes. From the latest in pharmacology and DBS to the tangible neuroprotective effects of exercise, diet, and mindfulness, we discussed the science behind these strategies and how they can be integrated into a holistic care model. This session emphasized practical approaches to managing Parkinson’s disease while addressing motor and non-motor symptoms alike. The presentation is here and the recording is on PD Active’s YouTube channel.
January Speaker Forum: Gene Therapies for Parkinson’s Disease
(Saturday, January 11, 2025)
Gene therapy as a treatment for Parkinson’s Disease has been explored in clinical trials for nearly 20 years. Our speakers, Dr. Nisha Chhabria and Dr. Amber Van Laar of AskBio, shared a brief background on “what is gene therapy”, as well as the history and evolution of gene therapy for patients with PD. They described ongoing clinical trials, and a glimpse into what the future may hold for gene therapies for PD and other devastating brain diseases. The recording is on PD Active’s YouTube channel.
November Speaker Forum: Women and Parkinson’s Disease: Addressing Differences and Unmet Needs
(Saturday, November 9, 2024)
This talk provided an overview of what we know currently about how women differ from men when it comes to risk factors for PD, motor and non-motor symptoms of PD, response to treatments, and social impact. They also discussed the unmet needs of women and ongoing and future research that is aimed to better understand gender differences in PD and tailor treatment strategies to improve care, outcomes, and quality of life in women. The presentation is here and the recording is on PD Active’s YouTube channel.
September Speaker Forum: Brain Function, Movement and Cognition: Implications for Parkinson’s Disease
(Saturday, September 7th, 2024)
A hallmark of Parkinson’s disease is the loss of dopamine production and dysfunction of the basal ganglia. Prof. Rich Ivry provided an overview of basal ganglia function with a focus on how Parkinson’s disease impacts not only motor function but also cognition. Following this, members of his Cognition and Action lab discussed on-going research projects being conducted in the lab that look at the interaction between movement and cognition. This research not only identifies changes in behavior related to basal ganglia function but also highlights instances where behavior remains unchanged with Parkinson’s disease. The presentations are here and the recordings are on PD Active’s YouTube channel.
August Round Table: Staying Safe in the Hospital for People with Parkinson’s
(Tuesday, August 13th, 2024)
People with PD are at a higher risk of hospitalization and face many challenges while in the hospital. In this round table Helena Fox discussed symptom management, and getting medications on time every time. Also talked about in this webinar was decreased movement opportunities, swallowing changes, and substituted medications that can exacerbate Parkinson’s symptoms. It is important for all people with Parkinson’s to be aware of the risks, prepare ahead, and know how to advocate for their needs while in the hospital. The presentation is here and the recording is on PD Active’s YouTube channel.
July Speaker Forum: An Introduction to Parkinson’s Disease for Spanish Speakers- Introducción a la Enfermedad de Parkinson para Hispanohablantes
(Saturday, July 13th, 2024)
In this talk, Dr. San Luciano delved into the fundamentals of Parkinson’s, from its characteristic symptoms to its treatments. She explored how it impacts daily life and how to address the challenges posed by this neurodegenerative disease.
In esta charla, la Dra. San Luciano profundizará en los fundamentos del Parkinson, desde sus síntomas característicos hasta sus tratamientos. Explorará cómo afecta la vida diaria y cómo abordar los desafíos que plantea esta enfermedad neurodegenerativa.
Dr. San Luciano is a native Spanish speaker, and the Forum was moderated by a native Spanish speaker. The presentation is here and the recording is on PD Active’s YouTube channel.
June Speaker Forum: Lifestyle as a Disease Modification Strategy with Dr. Laurie Mischley
(Saturday, June 8th, 2024)
It is often said that Parkinson’s is caused by a combination of “Genes + Environment” – the goal of this lecture is to describe the environmental contributors to disease progression and reversal. The Modifiable Variables in Parkinsonism (MVP) Study has been tracking over 3,000 participants with PD for the past decade – there are dozens of choices, or ‘modifiable variables,’ people make throughout the day that are associated with fewer/ greater accumulation of symptoms over time. Topics covered include: financial status, social health and friendships, physical activity, diet and food preparation methods, nutraceuticals and dietary supplements. The Pro Diet handout is here and the recording is on PD Active’s YouTube channel.
April Round Table: Exercise Smarter, Not Harder – Physical Therapy and Evidence-Based Exercise
(Tuesday, April 9th, 2024)
Most of us are familiar with the PD mantra “exercise is medicine”. Angela Rusher of Samuel Merritt University’s Department of Physical Therapy presented evidence to support why PD-specific exercises are better for us than non-specific exercises, and what those specific exercises might look like for you. The presentation, handout and notes are available here and the recording is available here.
December Round Table: Annual Member Survey Responses
(Tuesday, December 5th, 2023)
Every year PD Active surveys its members on a variety of topics related to PD Active’s Programs and Events. This summer, almost 200 members of the PD Active community completed our survey. Your feedback is very valuable to us; we strive to make PD Active YOUR resource for Parkinson’s disease. Watch to see the results of the survey and to hear discussions about PD Active plans for the future. Presented by the PD Active Board of Directors. The presentation is available here and the recording is on PD Active’s YouTube channel.
October Round Table: Report Back from World Parkinson’s Congress in Barcelona
(Saturday, October 7th, 2023)
PD Active members Deborah Harris and Adam Mizock shared about their experiences and what they learned at this important event. The triennial World Parkinson Congresses provide an international forum for scientists, clinical researchers, health care professionals, people with Parkinson’s and others to come together to discuss, learn, and engage in debate around the latest scientific discoveries, medical, and comprehensive care practices related to Parkinson’s disease. The recording is on PD Active’s YouTube channel.
September Speaker Forum: Wearables and DBS — Getting Your PD Data Directly To Your Doc
(Saturday, September 30th, 2023)
With today’s technology, it is possible for our PD symptoms to be tracked automatically by wearable devices (e.g., smart watches) and by DBS systems, including our medication regimen and our exercise information, then have it all delivered to your neurologist. This Speaker Forum session focuses on one such piece of technology out there: the StrivePD application from Rune Labs, headquartered in San Francisco. You will hear from CEO/Founder, Brian Pepin, and an actual user of the technology, Ben Stecher. The presentation is available here and the recording is on PD Active’s YouTube channel.
August Speaker Forum: Gut Microbiome and Parkinson’s Disease
(Tuesday, August 8th, 2023)
The Gut Microbiome is the community of bugs that live inside the digestive tract. Studies show that the Gut Microbiome in people with PD is different from that in people without PD. Studies also suggest that these differences may contribute to inflammation, constipation, and PD symptoms. Watch to learn about this fascinating topic as well as learn about an opportunity to participate in an exciting Stanford research study led by Dr. Palushaj. The presentation is available here and the recording is on PD Active’s YouTube channel. The interest form for the clinical trial can be found here.
July Round Table: Building Your PD Care Team
(Tuesday, July 11th, 2023)
Our community panelists, Kathe Friel (PwP) & her husband Dan, and Kerrie Halmi (PwP) & her husband Mark, shared with us their experiences — good and bad — along their journey to build a Parkinson’s care team. They covered both Kaiser experiences as well as non-Kaiser. Not sure who should be on your “team”? Who should be your team’s “quarterback”? What questions should you be asking your GP about all of this? Find out here! The recording is on PD Active’s YouTube channel.
April Round Table: Occupational & Physical Therapy — Coping with PD On the Daily
(Tuesday, April 19th, 2023)
Dr. Katrina Long, assistant professor at San Jose State University (SJSU) in the department of occupational therapy and research affiliate at Columbia University, and
Dr. Anuja Chandrana, Doctor of Physical Therapy (Board Certified Neurologic Specialist) and assistant professor at San Jose State University (SJSU), summarized for us the physical and occupational challenges confronting people with Parkinson’s. They also shared useful exercises and tips on how to effectively manage day to day life with Parkinson’s. The presentation is available here and the recording is on PD Active’s YouTube channel.
March Speaker Forum: Hallucinations and Dementia with PD — What to Know
(Saturday, March 11th, 2023)
Dr. Angelika Zarkali, Neurologist at the Dementia Research Center at University College London (UCL) and Dr. Suzanne Reeves, PhD, Professor of Old Age Psychiatry and Psychopharmacology in the Division of Psychiatry at the University College London (UCL) joined us via Zoom from London. They shared with us their recent findings on hallucinations and dementia pertaining to Parkinson’s disease. They defined for us what hallucinations and dementia might be and what we should look for. They also discussed the origins of these symptoms and treatment options, along with other valuable resources. The presentations are available here and the recording is on PD Active’s YouTube channel.
February Round Table: Is it Time to Park the Car?
(Tuesday, February 14th, 2023)
In this interactive Round Table we addressed and discussed the often-challenging, frequently sensitive discussions and decisions around driving with PD. Topics included: * Impairment signs to look for * Resources to consult * Options after you “park the car”*, and more. Melanie Henry; CEO & DriveABLE Licensed Assessment Provider, Driver Cognitive Assessment Center, LLC (DCAC) gave a presentation about driving with PD and is a licensed driving instructor and helps seniors to build on their defensive driving skills and regain confidence behind the wheel. The presentation is available here, the resources here, and the recording is on PD Active’s YouTube channel.
January Speaker Forum: Sleep Disorders and PD
(Saturday, January 21st, 2023)
Dr. Liza Ashbrook discussed common sleep disorders, such as sleep apnea, excessive daytime sleepiness, restless leg syndrome and REM sleep behavior disorder and their relation to PD. The talk addressed symptoms of these disorders, how often they are seen in Parkinson’s disease, how they are diagnosed, and how they are treated. The presentation is available here and the recording is on PD Active’s YouTube channel.
December PD Active Community Survey Report Back 2022
(Tuesday, December 6th, 2022)
Almost 200 members of the PD Active community completed our survey in the spring of 2022. The results of the survey were displayed and discussed. Presented by the PD Active Board of Directors. The presentation is available here and the recording is on PD Active’s YouTube channel.
November Round Table Caregiving for PD: Navigating Your Options and Planning for the Future
(Saturday, November 12th, 2022)
Speakers: Janet Thompson, Veronica Sibley and Janelle Reinelt
In this interactive forum, Janet Thompson, Veronica Sibley and Janelle Reinelt discussed planning for future caregiving needs. We hosted 2 professionals, Janet Thompson and Veronica Sibley, and one care partner, Janelle Reinelt, from PD Active community. Some of the issues we discussed were how do you know when it is time to get outside help, how to select a care community or in-home caregiver, costs and how to afford care, making adjustments to your home, suggestions for care partners to tend to own needs while caring for others. Each panelist presented for 20 min, then we opened up for general Q&A with PD Active care partner available for questions as well. The presentation is available here, the resources page is here and the recording is on PD Active’s YouTube channel.
October Speaker Forum: Speech and Swallowing Challenges with Parkinson’s
(Tuesday, October 11th, 2022)
Speakers: Alyssa “Lyssa” Rome (SLP, private practice), Julie Hicks (SLP, Stanford & CSEB), Janelle Reinelt (PDA member)
Lyssa Rome is a speech-language pathologist who specializes in holistic, person-centered treatment for adults with neurogenic communication, cognition, and swallowing disorders. Julie Hicks is a speech-language pathologist providing outpatient neurologic rehabilitative care at the Stanford Neuroscience Health Center. She is also a clinical lecturer and practicum supervisor for the Department of Communication Sciences and Disorders faculty at California State University, East Bay (CSUEB). Janelle is a PD Active member whose husband has Parkinson’s. Janelle and her husband, Jerry, have been working with Lyssa for some time, and they are pleased with the results. The presentation is available here and the recording is on PD Active’s YouTube channel.
PD Active Round Table: The National Plan to End Parkinson’s Act
(Tuesday, September 19th, 2022)
The discussion with Nora Eigenbrodt, Public Policy Officer with the Michael J Fox Foundation for Parkinson’s Research, was very informative about The National Plan to End Parkinson’s Act (H.R. 8585). This groundbreaking, bipartisan bill was introduced in Congress in July 2022 and at the round table we discussed what the National Plan will accomplish, where it is in the legislative process now, what the timeline is, the National Day of Action: how you can participate, and also tips for speaking about the National Plan. The presentation is available here and the recording is on PD Active’s YouTube channel.
September Speaker Forum: Hope and reality on the path to curing Parkinson’s disease: My perspective as a patient, scientist, and entrepreneur with Matt Jacobson
(Saturday, September 10th, 2022)
Matthew P. Jacobson, Ph.D., has been a faculty member in the Department of Pharmaceutical Chemistry at UCSF since 2002. In 2012, shortly before turning 40 years old, he was diagnosed with Parkinson’s Disease. Since then, he has served as Chair of his department, and co-founded 6 biotechnology companies, including two that are now listed on NASDAQ, Global Blood Therapeutics and Relay Therapeutics. His interest in neurodegenerative diseases predates his diagnosis, and he is working on developing new therapeutics for Parkinson’s Disease at UCSF and in one of his companies, NineSquare Therapeutics.
Did you miss the Speaker Forum or want to revisit it? The presentation is available here and the recording is on PD Active’s YouTube channel.
August Round Table: The Human Motor Control and Neuromodulation Lab’s Ongoing Clinical Trials
(Tuesday, August 9th, 2022)
Ask the Experts Round Table by PD Active had an open conversation with research assistants from Helen Bronte-Stewart’s Human Motor Control and Neuromodulation Lab, Stanford University. They discussed the field of Parkinson’s research and presented on ongoing and recruiting clinical trials at the Human Motor Control and Neuromodulation Lab, with an emphasis on the technology that enables their research. We discussed and answered questions on the topic. The session was hosted and moderated by PD Active. The presentation is available here and the recording is on PD Active’s YouTube channel.
June Speaker Forum: A Caregiver’s Journey with Dave Iverson
(Saturday, June 11th, 2022)
Dave Iverson is a writer, documentary film producer/director and retired broadcast journalist. When Dave was 57, he was diagnosed with Parkinson’s. When he was 59, he moved in with his 95-year old mom Adelaide when she could no longer care for herself. His new memoir Winter Stars: An Elderly Mother, an Aging Son and Life’s Final Journey tells the story of the 10 year caregiving odyssey they shared until her passing at the age of 105.
Did you miss the Speaker Forum or want to revisit it? The recording is on PD Active’s YouTube channel.
April Round Table: Long Term Disability, Estate Planning & Trusts
(Tuesday, April 12, 2022)
Ask the Experts Round Table by PD Active had an open conversation with two attorneys Dan Feinberg & Travis Neal helping us navigate trust/estate planning and answer questions about long term disability as well as disability employment discrimination. We discussed and answered questions on the topic. The session was hosted and moderated by PD Active. The recording is on PD Active’s YouTube channel.
March Speaker Forum: Movement Problems in PD: Understanding Dyskinesia & Gait, & How to Treat Them
(Saturday, March 12, 2022)
Dr. Salima Brillman is a board-certified neurologist with a fellowship in movement disorders, which includes Parkinson’s Disease. Dr. Brillman became one of the first concierge movement disorder neurologists in the Bay Area, seeing patients in her office, in their homes or via telemedicine. Dr. Brillman has extensive experience in diagnosing and treating all forms of movement disorders and is proficient in DBS, Duopa and Neurotoxin therapies.
Did you miss the Speaker Forum or want to revisit it? The presentation is available here and the recording is on PD Active’s YouTube channel.
February Speaker Forum: Tips for Living Well with Parkinson’s Disease
(Saturday, February 12, 2022)
Dr. Soania Mathur, diagnosed with PD at age 27, is a renowned expert on living well with PD. This Forum was held in a “fireside chat” format discussing questions submitted by attendees. Dr. Mathur’s website Unshakable MD: https://www.unshakeablemd.com/ and other resources from her talk are PD Avengers: https://www.pdavengers.com/ and the Book: Ending Parkinson’s Disease, A Prescription for Action (Dorsey, Sherer, Okun, Bloem, 2020). Free copy: info@endingpd.org.
Did you miss the Speaker Forum or want to revisit it? The presentation is available here and the recording is on PD Active’s YouTube channel.
January Speaker Forum: The Influence of Environmental and Occupational Toxins on Neurological Diseases
(Saturday, January 8, 2022)
Dr. Beate Ritz (https://ph.ucla.edu/faculty/ritz) is Professor of Epidemiology with co-appointments in the Environmental Health department at the UCLA School of Public Health and in Neurology, UCLA School of Medicine. Dr. Ritz’s research focuses on the health effects of occupational and environmental toxins such as pesticides, ionizing radiation, and air pollution on chronic diseases including neurodegenerative and neurodevelopmental disorders (Parkinson’s disease, autism cognition).
The PD Active live webinar taught about the health effects of occupational and environmental toxins on chronic diseases including neurodegenerative and neurodevelopmental disorders like Parkinson’s disease. Did you miss the Speaker Forum or want to revisit it? The presentation is available here and the recording is on PD Active’s YouTube channel.
October Speaker Forum: Exercise Is Medicine
(Saturday, October 16, 2021)
Dr. Nijee Luthra is a neurologist at UCSF Health who cares for patients with Parkinson’s disease, tremors, dystonia (a movement disorder that causes uncontrollable muscle contractions), ataxia (a nervous system disorder that causes loss of coordination and slurred speech) and other movement disorders. One of Dr. Luthra’s research interests is in finding better treatments for Parkinson’s disease and other movement disorders, including exercise.
The PD Active live webinar taught about how Exercise is Medicine for PD. Did you miss the Speaker Forum or want to revisit it? The presentation is available here and the recording is on PD Active’s YouTube channel.
August Round Table: Tech Tips for People with Parkinson’s
(Tuesday, August 17, 2021)
Ask the Experts Round Table by PD Active had the support of our iPhone expert Monique Does. We discussed tips and answered tech questions on how to use your smart phone (Apple or Android). Attendees asked and submitted questions on the topic. The session was hosted and moderated by PD Active. The presentation is available to view and download: Tech Tips Presentation.
July Speaker Forum: Palliative Care and Parkinson’s: A Total Health Approach
(Saturday, July 10, 2021)
Dr. Maya Katz is a movement disorders neurologist at Stanford Health Center. Her main clinical and research focus is optimizing the delivery and accessibility of palliative care for people with Parkinson’s disease and related disorders. Dr. Katz is dedicated to taking a comprehensive approach to well-being and to optimizing quality of life for patients and their families.
The PD Active live webinar taught about Palliative Care and Parkinson’s. Did you miss the Speaker Forum or want to revisit it? The presentation is available here and the recording is on PD Active’s YouTube channel.
June Round Table: Finding Your Voice with PD
(Tuesday, June 6, 2021)
“Finding Your Voice with PD” with speakers Heather Kennedy and Sharon Krischer was a fascinating talk about the physical challenges to the emotional struggles associated with voice and PD. Our panelists shared their expertise and our attendees made connections to their own lives. That event can be viewed on the PD Active YouTube channel.
April Round Table: What to Know About the Legal and Some Insurance Issues Surrounding PD
(Tuesday, April 13, 2021)
Our April Ask the Experts Round Table was well received. The topic was “What to Know About the Legal and (some) Insurance Issues Surrounding PD”, and our panelists were Deborah England (attorney specializing in labor law) and Brandie Sendziak (attorney specializing in SSD/SSDI). Our attendees had lots of good questions. That event can be viewed on the PD Active YouTube channel.
March Speaker Forum: Holistic Treatments for PD: Wellness, Integrative Medicine, Social Isolation
(Saturday, March 13, 2021)
Dr. Indu Subramanian received her medical degree from the University of Toronto, Canada. She completed a neurology residency and a Movement Disorders fellowship at UCLA. Currently Dr. Subramanian is a Clinical Professor of Neurology at UCLA. She established the movement disorder clinic at the West Los Angeles Veterans Administration and is the Director of the South West PADRECC (Parkinson’s Disease Research, Education and Clinical Care) Center of Excellence in Parkinson’s Disease.
Dr. Subramanian has a strong interest in integrative medicine with a special interest in Yoga and Mindfulness. She is designing a yoga teacher training program for yoga instructors interested in working with PD patients. Dr. Subramanian is board certified in Integrative medicine and is passionate about palliative care in Parkinson’s disease. She is the host of a virtual support group and webinar series with world experts in PD.
The PD Active live webinar taught about Wellness, Integrative Medicine, Social Isolation and Holistic Treatments for PD. Did you miss the Speaker Forum or want to revisit it? The recording is available on PD Active’s YouTube channel.
February Round Table: Dying with Dignity
(Tuesday, February 9, 2021)
This was an Ask the Experts Round Table by PD Active with panelists Sue Moss (PDA member), Thalia DeWolf (RN) and Janet Thompson (Senior Living Counselor). It was a free-flowing conversation with panelists’ views, information and experiences. Attendees also asked and submitted questions on the topic.
Did you miss the Round Table or want to revisit it? The recording is available on PD Active’s YouTube channel.
January Speaker Forum: Nutrition and the Neuroscience of PD
(Saturday, January 9, 2021)
Dr. Laurie Mischley studied naturopathic medicine (ND) at Bastyr University and epidemiology (MPH) and nutritional sciences (PhD) at the University of Washington. Her work is focused on identifying the nutritional requirements unique to individuals with neurodegenerative diseases.
The PD Active live webinar taught about nutrition and the neuroscience of PD. The presentation by Dr. Mischley was followed by discussion and questions from participants. Did you miss the Speaker Forum or want to revisit it? The recording is available on PD Active’s YouTube channel.
December Round Table with Claire McLean, DPT and Nate Coomer, DPT on Exercise and Motivation During COVID: Avoiding Depression and Apathy
(Tuesday, December 8, 2020)
PD Active convened an Ask the Experts Round Table; “Exercise and Motivation During COVID: Avoiding Depression and Apathy” with panelists Claire McLean, DPT and founder of Rogue in Motion and Nate Coomer, DPT and founder of The Daily Dose PD.
The conversation was lively and informative. Did you miss the Round Table or want to revisit it? The recording is available on PD Active’s YouTube channel.
November Speaker Forum: Surgical Options for PD: DBS and Beyond- A Look at Pain and Pain Management with Dr. Jaimie Henderson
(Saturday, November 14, 2020)
Dr. Henderson is a Professor of Neurosurgery and Neurology at the Stanford University Medical Center. His clinical focuses are Functional Neurosurgery, Movement Disorders, Epilepsy, Neurological Surgery, Trigeminal Neuralgia, Deep Brain Stimulation, and Neuromodulation. He spoke to the PD Active community on “Surgical Options for PD: DBS and Beyond” as well as Chronic Pain and Pain Management.
A recording of Dr. Henderson’s Forum/Webinar is on PD Active’s YouTube Channel.
October Speaker Forum: Cannabis and the Treatment of Parkinson’s:
Is Anything Known? with David E. Presti
(Saturday, October 10, 2020)
The medicinal, mind-altering, material, and nutritional qualities of Cannabis have resulted in human relationships with this plant dating back thousands of years. Its complex and unique chemistry has fostered the development of important discoveries in neuroscience. What, if anything, is known about the potential therapeutic effects of Cannabis in the treatment of Parkinson’s. David E. Presti teaches neurobiology and psychology at the University of California, Berkeley, where he has been on the faculty in molecular and cell biology for nearly 30 years.
A recording of Dr. Presti’s Forum/Webinar is on PD Active’s YouTube Channel.
August Round Table on DBS: What to Expect and How to Live With It
(Tuesday, August 18, 2020)
This was a free-flowing conversation: Our panelists shared their experiences, and our attendees asked questions on the topic. The session was hosted and moderated by PD Active.
Experienced Community Panel
Karen Garrison (DBS patient)
Mike Gabel (DBS patient)
Amy Scheinbaum (care partner of DBS patient)
A recording of the DBS Round Table is on PD Active’s YouTube Channel.
July Forum/Webinar with Dr. Diviya Kaul on Medications in Parkinson’s Disease
(Saturday, July 11th, 2020)
Diviya Kaul, MD is a Movement Disorders Specialist currently working at Kaiser Permanente in Walnut Creek. Her webinar about medications in PD was live and there was an opportunity to engage by submitting questions as she presented. This is a condensed version of the slides that were used in her presentation.
